Can someone help me find out what I have? I have been to the doctors and a lot of my tests are abnormal but they cannot find the exact cause of my symptoms and test results. I am a 24 year old female. I have a pacemaker for 3 years now. Here is a list of my symptoms: chest pain on and off (same spot always, shortness of breath easily, rapid heart rate( now resolved most of the time due to my ablation of my heart), dizziness, weakness. My doctors so far have diagnosed me with postural orthostatic tachycardia syndrome. My oxygen drops only with minimal exercise from 100% to 80% in 5 minutes jogging on tread mill. The doctors have no clue why with exertion my heart rate goes to 160’s (after ablation) and oxygen down to 80% with minimal exercise. Please help me. I do not have faith in doctors anymore.
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If definitely sounds like you have dysatonomia (a general term that includes POTS, and other disorders). I would suggest going to a major hospital for advise on how to manage symptoms. I have had good experiences at UCLA (Neurology department), Stanford (cardiology department) or Vanderbilt Med Center. Most regular doctors (even good specialist) just are not able to help with this problem completely. It is not well understood in the medical community right now, except in people at the cutting edge of medicine. I was not diagnosed until I went to UCLA. Good Luck!
A friend of mine had similar symptoms, but much worse. They ended up finding a hole in his heart and something wrong with one of his “valves” (sorry don’t know more). He had the same thing, when he would exercise, his 02 level and his heart rate would plummet. I think that was caused by the bad valve. After open heart surgery he is pretty much 100% now.
As the complaints are connected with your heart, a vital organ; you may perhaps require an admission for further investigations and evaluation by the cardiologists, to fix the diagnosis. Any probable idiopathic cardiac myopathy or a hyperthyroidism etc. also may have to be excluded.
may you should check your cholesterol levels?
Hi, – The initial diagnosis clearly is that there’s some defect in the pulmonary loop, -not the systemic arterial loop. That is, while your heart may well be pumping sufficiently MORE blood round your system when it’s stressed, the pulmonary action (throughput into and out of the lungs) is impaired and so the blood returning to the heart is not being replenished with oxygen efficiently enough to satisfy the demands of your organs.
The absolutely first test to determine whether this IS the case is to measure your cardiac output, which could be the only alternative causal mechanism. If your cardiac output doesn’t RISE significantly (which it SHOULD) on being subjected to stress, then that could account for the symptoms you describe,. But if your cardiac output rises normally, then it’s 100% certain that your pulmonary action is impaired, and is the cause of your problems.
The second test is to measure the level of oxygenation of blood being returned into your left ventricle before it is compressed and ejected back into your aorta. This would clinch the diagnosis
EDIT: It’s absolutely nothing to do with your cholesterol levels, nor your thyroid function.
(- and oh,- strangely enough -, there actually ARE people on Answers who know more about this subject than doctors….. odd, isn’t it?